We are working so hard to find better treatment and a cure for AHC.  Science is there, it is possible!  Unfortunately, the funding is not.  Families of people with AHC have been working so hard to raise the funds!  We need your help!

Daxton is a warrior who conquers all obstacles!  Seriously, look it up!  He has endured so much in his short life.  AHC likes to try to stop him from having a “normal” life. We are determined to help him, and others conquer AHC!  We will NOT let AHC win! 

Through research, education, and family support, we have ONE MISSION: END AHC.

Through these three pillars of our mission, the AHC Foundation works to provide our community support and hope as we all move through this journey. Funding RESEARCH from small studies to gene discovery, to collaboration on landmark gene therapy that holds much potential; providing EDUCATIONAL resources to families through support groups, introductions to physicians, and our website; SUPPORTING FAMILIES through our support group, biennial family meetings, and availability of volunteers for crisis; are all ways the AHC Foundation works to END AHC. 

Join us in fundraising to continue to provide resources to families, fund research with high potential, and raise awareness of this rare disease.