ALICE'S ARMY
Alternating Hemiplegia of Childhood Foundation
ALICE'S ARMY
Fundraising Page Image

Alice was born on November 4th, 2020 and diagnosed with AHC on February 3rd, 2021. Alternating Hemiplegia of Childhood (AHC) is a rare neurological disorder that affects one in a million children. AHC is characterized by attacks of paralysis, involuntary muscle spasms, uncontrollable eye movements, changes in muscle tone and sometimes seizures. This can last anywhere from a few minutes to days and can cause cognitive and physical impairment or delay. These episodes are usually triggered by the unavoidable -- bright lights, loud noises, crowds, extreme temperatures, temperature change, water exposure, phyisical activity, odors, foods, emotional response, medications, and fatigue.

 

AHC IS OFTEN REFERRED TO AS "7 DISORDERS IN ONE"--STROKE, EPILEPSY, CEREBRAL PALSY, PARKINSON'S, ADHD, AUTISM, AND ALZHEIMERS.

 

There is currently no cure. AHCF, Cure AHC, and Hope for Annabel are partnering together to help fund research to develop a cure. It takes family and friends coming together to help raise awareness NOW! Time is of the essence for these kids; the older they get the less likely they will be eligible for clinical trials. Let's be apart of something huge not only for Alice but for other children with AHC.

 

We need your help before it is too late!

Their future depends on it.

 

You can read more about Alice's story, AHC, The AHC Foundation, research, event information, or donate at our website www.alicesarmy.com.

 

ABOUT One Mission: END AHC

Through research, education, and family support, we have ONE MISSION: END AHC.

Through these three pillars of our mission, the AHC Foundation works to provide our community support and hope as we all move through this journey. Funding RESEARCH from small studies to gene discovery, to collaboration on landmark gene therapy that holds much potential; providing EDUCATIONAL resources to families through support groups, introductions to physicians, and our website; SUPPORTING FAMILIES through our support group, biennial family meetings, and availability of volunteers for crisis; are all ways the AHC Foundation works to END AHC. 

Join us in fundraising to continue to provide resources to families, fund research with high potential, and raise awareness of this rare disease. 

Supporters
Name Date Amount Comments
Anonymous Friend 03/05/2024 $20.99  
Anonymous Friend 02/29/2024 $20.97  
Anonymous Friend 02/29/2024 $51.96 Sending hugs and love from Chicago
Anonymous Friend 02/24/2024 $20.97 Praying for you 🙏
Frances Campbell 02/24/2024 $15.00 From someone who has a rare disease, to a beautiful girl with a super rare disease. I'm praying.
Jessica Montanaro 02/23/2024 $10.65 What a beautiful little girl. Sending love
Brandy Schroeder 02/21/2024 $20.99  
Susan Warner 01/04/2024 $10.64  
Fuller Family 01/02/2024 $103.71  
Kelley Callan 01/01/2024 $52.50  
Ashley Bell 12/31/2023 $51.96  
Ana Fernandes E Silva 12/31/2023 $5.47 It’s not much but it’s all I can donate at this moment.
Anonymous Friend 11/29/2023 $31.30  
Gloria Vermie 10/15/2023 $10.73 đź©·
Alice's Army 10/15/2023 $4,639.08 Thank you to our entire Army for helping put on an amazing event! We love you!
Anonymous Friend 10/09/2023 $51.85  
Denise Zoss 10/08/2023 $77.62  
Anonymous Friend 10/08/2023 $20.93 You are in my prayers sweet girl.
Valerie Defenbaugh 10/06/2023 $758.84  
Kory Conrad 10/06/2023 $102.27  
Tina Robinson 10/05/2023 $15.77  
Theresa & Brad Durkin 10/05/2023 $260.70 For Alice Silver
Danielle Philips 09/15/2023 $521.09  
Robin Maggert 09/06/2023 $51.85  
Carrie Dunn 05/28/2023 $20.93  
Denise Everitt 05/28/2023 $10.62  
Anonymous Friend 05/14/2023 $103.39  
Ana Radu 05/07/2023 $10.62 God love u
Molly Schmidt 05/03/2023 $10.62  
Megan Purser 05/01/2023 $10.62  
Bri Haeder 04/25/2023 $51.85  
Amber Hinitt 04/19/2023 $10.62 I saw a TikTok video about a little girl named Alice. I don’t have much to give right now as I’m a stay at home mom but please take this and find a cure.
Anonymous Friend 04/14/2023 $15.77  
Anonymous Friend 04/14/2023 $51.85  
Selena Khamvongsa 04/12/2023 $20.93 For a child to actually enjoy their childhood. May the pain and suffering come to an end.
Amanda Boyea 04/11/2023 $10.62 I wish I could do more at this time, when I can I most definitely will. Bless your family, and I will be praying everyday for your baby girl hugs to you
Chelsea Saucedo 04/11/2023 $20.93  
Kieron Brown 04/10/2023 $20.93 Keep fighting
Melissa Garcia 03/30/2023 $20.93  
Kaitlin Sakhnini 03/30/2023 $82.77  
Cassie Anderson 03/29/2023 $10.62  
Becky Deterding 03/28/2023 $77.62  
Anonymous Friend 03/28/2023 $51.85  
Jennifer Gomez 03/25/2023 $31.23  
Leandra Kellam 03/24/2023 $26.08  
Anonymous Friend 03/23/2023 $5.46  
Anonymous Friend 03/23/2023 $26.08  
Michaela Manibusan 03/23/2023 $5.46  
Ashley Edwards 03/22/2023 $20.93  
Anonymous Friend 03/06/2023 $51.85  
Anonymous Friend 02/28/2023 $125.00  
Brooke Ginsberg 02/28/2023 $26.08  
  Total $7,860.10  
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