Alice was born on November 4th, 2020 and diagnosed with AHC on February 3rd, 2021. Alternating Hemiplegia of Childhood (AHC) is a rare neurological disorder that affects one in a million children. AHC is characterized by attacks of paralysis, involuntary muscle spasms, uncontrollable eye movements, changes in muscle tone and sometimes seizures. This can last anywhere from a few minutes to days and can cause cognitive and physical impairment or delay. These episodes are usually triggered by the unavoidable -- bright lights, loud noises, crowds, extreme temperatures, temperature change, water exposure, phyisical activity, odors, foods, emotional response, medications, and fatigue.
AHC IS OFTEN REFERRED TO AS "7 DISORDERS IN ONE"--STROKE, EPILEPSY, CEREBRAL PALSY, PARKINSON'S, ADHD, AUTISM, AND ALZHEIMERS.
There is currently no cure. AHCF, Cure AHC, and Hope for Annabel are partnering together to help fund research to develop a cure. It takes family and friends coming together to help raise awareness NOW! Time is of the essence for these kids; the older they get the less likely they will be eligible for clinical trials. Let's be apart of something huge not only for Alice but for other children with AHC.
We need your help before it is too late!
Their future depends on it.
You can read more about Alice's story, AHC, The AHC Foundation, research, event information, or donate at our website www.alicesarmy.com.
Through research, education, and family support, we have ONE MISSION: END AHC.
Through these three pillars of our mission, the AHC Foundation works to provide our community support and hope as we all move through this journey. Funding RESEARCH from small studies to gene discovery, to collaboration on landmark gene therapy that holds much potential; providing EDUCATIONAL resources to families through support groups, introductions to physicians, and our website; SUPPORTING FAMILIES through our support group, biennial family meetings, and availability of volunteers for crisis; are all ways the AHC Foundation works to END AHC.
Join us in fundraising to continue to provide resources to families, fund research with high potential, and raise awareness of this rare disease.
Supporters | |||
Name | Date | Amount | Comments |
Anonymous Friend | 03/05/2024 | $20.99 | Anonymous Friend | 02/29/2024 | $20.97 | Anonymous Friend | 02/29/2024 | $51.96 | Sending hugs and love from Chicago | Anonymous Friend | 02/24/2024 | $20.97 | Praying for you 🙏 | Frances Campbell | 02/24/2024 | $15.00 | From someone who has a rare disease, to a beautiful girl with a super rare disease. I'm praying. | Jessica Montanaro | 02/23/2024 | $10.65 | What a beautiful little girl. Sending love | Brandy Schroeder | 02/21/2024 | $20.99 | Susan Warner | 01/04/2024 | $10.64 | Fuller Family | 01/02/2024 | $103.71 | Kelley Callan | 01/01/2024 | $52.50 | Ashley Bell | 12/31/2023 | $51.96 | Ana Fernandes E Silva | 12/31/2023 | $5.47 | It’s not much but it’s all I can donate at this moment. | Anonymous Friend | 11/29/2023 | $31.30 | Gloria Vermie | 10/15/2023 | $10.73 | 🩷 | Alice's Army | 10/15/2023 | $4,639.08 | Thank you to our entire Army for helping put on an amazing event! We love you! | Anonymous Friend | 10/09/2023 | $51.85 | Denise Zoss | 10/08/2023 | $77.62 | Anonymous Friend | 10/08/2023 | $20.93 | You are in my prayers sweet girl. | Valerie Defenbaugh | 10/06/2023 | $758.84 | Kory Conrad | 10/06/2023 | $102.27 | Tina Robinson | 10/05/2023 | $15.77 | Theresa & Brad Durkin | 10/05/2023 | $260.70 | For Alice Silver | Danielle Philips | 09/15/2023 | $521.09 | Robin Maggert | 09/06/2023 | $51.85 | Carrie Dunn | 05/28/2023 | $20.93 | Denise Everitt | 05/28/2023 | $10.62 | Anonymous Friend | 05/14/2023 | $103.39 | Ana Radu | 05/07/2023 | $10.62 | God love u | Molly Schmidt | 05/03/2023 | $10.62 | Megan Purser | 05/01/2023 | $10.62 | Bri Haeder | 04/25/2023 | $51.85 | Amber Hinitt | 04/19/2023 | $10.62 | I saw a TikTok video about a little girl named Alice. I don’t have much to give right now as I’m a stay at home mom but please take this and find a cure. | Anonymous Friend | 04/14/2023 | $15.77 | Anonymous Friend | 04/14/2023 | $51.85 | Selena Khamvongsa | 04/12/2023 | $20.93 | For a child to actually enjoy their childhood. May the pain and suffering come to an end. | Amanda Boyea | 04/11/2023 | $10.62 | I wish I could do more at this time, when I can I most definitely will. Bless your family, and I will be praying everyday for your baby girl hugs to you | Chelsea Saucedo | 04/11/2023 | $20.93 | Kieron Brown | 04/10/2023 | $20.93 | Keep fighting | Melissa Garcia | 03/30/2023 | $20.93 | Kaitlin Sakhnini | 03/30/2023 | $82.77 | Cassie Anderson | 03/29/2023 | $10.62 | Becky Deterding | 03/28/2023 | $77.62 | Anonymous Friend | 03/28/2023 | $51.85 | Jennifer Gomez | 03/25/2023 | $31.23 | Leandra Kellam | 03/24/2023 | $26.08 | Anonymous Friend | 03/23/2023 | $5.46 | Anonymous Friend | 03/23/2023 | $26.08 | Michaela Manibusan | 03/23/2023 | $5.46 | Ashley Edwards | 03/22/2023 | $20.93 | Anonymous Friend | 03/06/2023 | $51.85 | Anonymous Friend | 02/28/2023 | $125.00 | Brooke Ginsberg | 02/28/2023 | $26.08 |
Total | $7,860.10 |