Hello, our names are Brannock Zanghi and Abby Hayes. We are juniors in high school and we are raising money for the Alternating Hemiplegia of Childhood Foundation. If you're not aware, Alternating Hemiplegia of Childhood is a rare neurological disorder that typically begins in infancy or early childhood. AHC entails recurrent episodes of paralysis, which can affect one or both sides of the body and may last for minutes or even days. Children affected by AHC are often taken out of school at a young age and are heavily reliant upon their parents. Joshua Marszalek, President of the AHC Foundation, said in a personal interview, "The rarity of this condition causes a lack of awareness and knowledge about AHC." Since AHC is rare, affected families often lack medical support because many doctors have never heard of the condition. Through this fundraiser, we hope to raise awareness for Alternating Hemiplegia of Childhood, as well as raise money for research with the ultimate goal of ending AHC. Please kindly consider donating to this cause.
Thank you,
Brannock and Abby
Through research, education, and family support, we have ONE MISSION: END AHC.
Through these three pillars of our mission, the AHC Foundation works to provide our community support and hope as we all move through this journey. Funding RESEARCH from small studies to gene discovery, to collaboration on landmark gene therapy that holds much potential; providing EDUCATIONAL resources to families through support groups, introductions to physicians, and our website; SUPPORTING FAMILIES through our support group, biennial family meetings, and availability of volunteers for crisis; are all ways the AHC Foundation works to END AHC.
Join us in fundraising to continue to provide resources to families, fund research with high potential, and raise awareness of this rare disease.
Supporters | |||
Name | Date | Amount | Comments |
Nancy Przesmicki | 01/30/2024 | $20.00 | Anonymous Friend | 10/17/2023 | $82.77 | Anonymous Friend | 10/17/2023 | $5.46 | Cynthia Cercone | 08/07/2023 | $52.39 | Karen Cormier | 07/23/2023 | $1,000.00 | Kathleen Van Hoof | 07/18/2023 | $103.39 | Jesse Zanghi | 07/15/2023 | $10.00 | Lawrence Sasso | 07/15/2023 | $104.47 | Nice job, Brannock! The Sasso family | Michele Martinelli | 07/14/2023 | $103.39 | Tracy Keilty | 07/13/2023 | $50.00 | Thank you for your kind spirits and bringing awareness ? | Anonymous Friend | 07/13/2023 | $103.39 | Jess Burks | 07/13/2023 | $20.93 | Amy Strecker | 07/13/2023 | $51.85 | Clemia Brittenum | 07/13/2023 | $154.93 | Sharon Kimatian | 07/12/2023 | $103.39 | Tish Oksanen | 07/12/2023 | $103.39 | Darlyne Mattia | 07/12/2023 | $77.62 | Good luck! | Caroline Fitzgerald | 07/12/2023 | $51.85 | Lots of love Caroline, Maeve and Keira | Lori DeWolfe | 07/12/2023 | $51.85 | Way to go, Brannock & Abby! | Eugene Connolly | 07/12/2023 | $104.47 | Carolyn Fischer | 07/11/2023 | $104.47 | Best of luck!!! | Robert McQuilkin | 07/11/2023 | $103.39 | Siobhan Curran | 07/11/2023 | $103.39 | Ben Zanghi | 07/11/2023 | $102.03 | Paul & Lisa Romano | 07/10/2023 | $258.01 | Anonymous Friend | 05/31/2023 | $206.47 | Caroline Buttner | 05/13/2023 | $103.39 | Anonymous Friend | 05/12/2023 | $103.39 | Lisa Dubay-Albert | 05/12/2023 | $103.39 | Kristine Shifrin | 05/12/2023 | $260.70 | Great job! | Doug Burks | 05/11/2023 | $62.16 | Paul Guarino | 05/11/2023 | $515.72 | Elizabeth Burks | 05/09/2023 | $515.72 | So proud of you both! Xoxo | Charlie/Deb Hayes | 05/08/2023 | $515.72 | Brian Zanghi | 05/08/2023 | $515.72 | Anonymous Friend | 05/07/2023 | $10.62 | Anonymous Friend | 05/07/2023 | $10.62 |
Total | $5,950.45 |