Alternating Hemiplegia of Childhood causes episodes of paralysis, dystonia (painful muscle contractions), cognitive and developmental delays, and in up to half of afflicted children, true epileptic seizures.
Connor so far suffers from mild autonomic symptoms of AHC including trouble regulating his body temperature, overstimulation, and tremors. His prognosis isn't guaranteed, however, as AHC is unpredictable and not well understood. Every “episode” can increase the risk of neurological damage leading to further delays, sometimes permanent. After an attack, some kids lose abilities they had already learned. This cruel disease can rob children of milestones they’ve already reached, sometimes for good. Nevertheless they bravely work again and again to relearn and rebuild what they can. Please help them stop the cycle and get a chance to win back their childhood.
| Supporters | |||
| Name | Date | Amount | Comments |
| Tom & Kate Byrne | 10/21/2022 | $3,432.00 | Lois Rather | 10/21/2022 | $50.00 | Connor Byrne | 10/02/2022 | $51.80 | Yea Connor! Best wishes to you & family!! | Kennedy Family | 10/02/2022 | $51.80 | Mark Carollo | 10/02/2022 | $206.28 | Suzanne Power | 10/02/2022 | $50.00 | Anonymous Friend | 10/02/2022 | $257.78 | Diane Oudhuis | 10/02/2022 | $103.30 | Love you guys! | George Demertsidis | 10/02/2022 | $154.79 | Mary Friel | 10/02/2022 | $51.80 | Matthew Rice | 10/02/2022 | $51.80 | Barb Ralph | 10/02/2022 | $51.80 | CFD E117 TL14 3RD SHIFT | 10/02/2022 | $247.48 | Jodi Gruby | 10/02/2022 | $51.80 | God Bless! Miss you guys! ? | Bill O’Brien | 10/01/2022 | $.00 | Melissa Wostratzky | 10/01/2022 | $.00 | Sue Kezios | 10/01/2022 | $.00 | Mike Cholipski | 10/01/2022 | $103.30 | Alexis Metcalf | 09/29/2022 | $.00 | Lena Lehner | 09/29/2022 | $.00 | Marge Eighner | 09/29/2022 | $103.30 | Barry O'CONNELL | 09/25/2022 | $.00 | Kim Chilicki | 09/24/2022 | $.00 | Pat Pajor | 09/17/2022 | $.00 | Bill Wennerberg | 09/13/2022 | $.00 | Carol McCormick | 09/11/2022 | $.00 | Michele Kadich | 09/09/2022 | $.00 | Kathy Byrne | 09/06/2022 | $.00 | Amanda Byrne | 09/06/2022 | $.00 | Tim Hunt | 09/05/2022 | $.00 | Tim Hunt | 09/05/2022 | $100.00 | Jim Jurackq | 09/03/2022 | $103.30 | Katie Rather | 09/02/2022 | $.00 | Mike Cholipski | 08/27/2022 | $.00 | Molly OGrady | 08/25/2022 | $.00 | Lauren Nugent | 08/25/2022 | $.00 | Jodi Farrell | 08/24/2022 | $.00 | Stephanie Byrne | 08/24/2022 | $.00 | Michelle Konecki | 08/24/2022 | $.00 | Susan Blomenberg | 08/17/2022 | $.00 | Susan Blomenberg | 08/11/2022 | $27.37 | Andrew Miner | 08/02/2022 | $.00 | Breana Calderon | 08/02/2022 | $.00 | Tom Power | 08/02/2022 | $1,000.00 | Andrew Miner | 08/02/2022 | $104.37 |
| Total | $6,354.07 | ||