
“Why was I born this way?” “Did you find a cure yet?”
We hear this often from Kiley, 21, when AHC steals her ability to walk, speak, eat, and drink. On a daily basis she doesn't know if her body will cooperate or if AHC will rear it's ugly head. It’s heartbreaking because she’s aware that she will miss out on the many milestones teens achieve, like driving a car, going away to college, meaningful friendships, or living on her own. She is aware that she is differently abled, but she still smiles, has a great sense of humor, and is the biggest social butterfly we know!
We’ve had a roller coaster of a journey with Kiley, our family and friends, and AHC. We have struggled with years of AHC episodes, years of challenging behaviors, years of life-threatening seizures, and years of stress due to the unpredictability of this disorder and the secondary health conditions that come with it. Although we try not to let AHC control our lives, we must often adjust and remain flexible. It has taught us patience, understanding, and above all, it has taught us strength and perseverance.
Kiley is the reason we fight so hard for a cure. We will never give up hope to END AHC. We will never stop trying to raise the funds to accomplish this.
95 CENTS OF EVERY DOLLAR goes toward the AHCF’s mission to END AHC! 95 CENTS...AMAZING!
Please donate on behalf of Kiley and all of her friends suffering with AHC. Let's end THIS race, for good!
Supporters | |||
Name | Date | Amount | Comments |
Janine Andrasco | 12/12/2022 | $100.00 | Sheila Andrasco | 12/12/2022 | $300.00 | Nancy Andrasco | 12/12/2022 | $100.00 | Paul Andrasco | 12/12/2022 | $100.00 | Mary Lu Wasniewski | 12/12/2022 | $100.00 | Stephen Forde | 11/03/2022 | $103.30 | Stay Positive! | Erik Nistad | 10/30/2022 | $257.78 | Anne and I are really glad that progress is being made in research and treatment of AHC. | Jeffrey & Sue Wagoner | 10/28/2022 | $100.00 | Don Mcdonald | 10/28/2022 | $50.00 | Alfred George | 10/24/2022 | $1,030.18 | Suzanne Weider | 10/24/2022 | $100.00 | Chuck McDonough | 10/23/2022 | $208.43 | Anonymous Friend | 10/22/2022 | $103.30 | Karen Palm | 10/21/2022 | $51.80 | You are a warrior my sweet Kiley!! | Maralynn Kearney | 10/20/2022 | $103.30 | Rooting for Kiley! | Ellen Krasavage | 10/20/2022 | $51.80 | Edie Radek | 10/20/2022 | $51.80 | Keep going Kiley!!! | Joseph Loumeau | 10/19/2022 | $51.80 | David McMurray | 10/19/2022 | $50.00 | JD Bowlin | 10/19/2022 | $51.80 | Kelly Brodeur | 10/19/2022 | $26.06 | Anonymous Friend | 10/19/2022 | $51.80 | Love being a part of Kiley’s Krew! Miss you guys. | Kevin Niwa | 10/19/2022 | $51.80 | Scott&Chris Pappas | 10/19/2022 | $51.80 | Madelynne Chappell | 10/19/2022 | $51.80 | The Hresko's | 10/19/2022 | $103.30 | Patti Oh | 10/19/2022 | $50.00 | Michelle Hallenbeck | 10/19/2022 | $208.43 | Hoping for a cure! | Mike & Claudia Hornacek | 10/18/2022 | $100.00 | Kiley Andrasco | 10/18/2022 | $26.06 | Brett Henderson | 10/18/2022 | $100.00 | Dan Rizzo | 10/18/2022 | $51.80 | Jerric Ramos | 10/18/2022 | $51.80 | Mary Kass | 10/18/2022 | $51.80 | Carolyn Termini | 10/17/2022 | $500.00 | Pat Andrasco | 10/13/2022 | $51.80 | Kathy Sharo | 10/11/2022 | $150.00 | Rita Kapmarski | 10/08/2022 | $103.30 | Robert & Gail Hantak | 10/07/2022 | $75.00 | Tom Sampson | 10/07/2022 | $500.00 | Robert & Martha Nuckols | 10/07/2022 | $25.00 | Linda & Paul Pelczynski | 10/04/2022 | $300.00 | Walter & Geraldine Nykaza | 10/04/2022 | $100.00 | Lisa Bartlett | 10/04/2022 | $51.80 | We will never give up Kiley! Be strong and fight! Much love from the Bartlett’s | Brittany Cain Miller | 10/03/2022 | $51.80 | Laura & James Fehrer | 10/03/2022 | $152.53 | Tom Pharris | 10/03/2022 | $100.00 | John & Beverly Sharo | 10/03/2022 | $100.00 | Barb & Terry Sharo | 10/03/2022 | $300.00 | Joe Petrarca | 10/03/2022 | $100.00 | Troy & Pam Smith | 10/02/2022 | $200.00 | U go girl ! | Andrew&Paige Pesko | 10/02/2022 | $51.80 | Gene & Kelly Andrasco | 10/02/2022 | $1,000.00 | Kiley, we will never give up! | Courtney Carlson | 10/02/2022 | $103.30 | We love you | Brian Lang | 10/02/2022 | $51.80 | Maureen Reid | 10/02/2022 | $103.30 | Hope that someday no one will ever have to endure this disease. | Ron and Amy Amato | 10/02/2022 | $41.50 | Good luck with your fundraising efforts to find a cure for AHC! | Katelyn Mendez | 10/02/2022 | $51.80 | Christina & Michael Peyser | 10/01/2022 | $77.55 | Thanks for the smiles and happiness YOU bring to us and others...with your smile and notes... | Jennifer Waterman | 10/01/2022 | $103.30 | Go Kiley!!!!! Team Kiley all the way!! | Karin Webber | 10/01/2022 | $103.30 | Wish I could be there to support you and Kiley! Hope it’s a great day! | Betsy Hess | 10/01/2022 | $103.30 | To the Andrasco Family: Wish I could be there! | Karen Albers | 10/01/2022 | $206.28 | Good luck Kiley! Will be rooting from TN! | Zele Paz | 10/01/2022 | $103.30 | Annamarie Bader | 10/01/2022 | $51.80 | Way to go, Kiley! Miss you! -Mrs. Bader ☺️?? | Sandy Paolella | 10/01/2022 | $103.30 | Kiley’s Krew!! | Kim Schroeder | 10/01/2022 | $51.80 | Kiley- you are so amazing! Keep up the good work! | Leonard & Bernadette Ratuszny | 10/01/2022 | $75.00 | Antonia & Frank Fico | 10/01/2022 | $50.00 | Richard Sundstrom | 10/01/2022 | $700.00 | Jeni Hefferan | 09/30/2022 | $51.80 | Go Kiley! | Dave and Maureen Leming | 09/30/2022 | $52.34 | Bridget Stodden | 09/29/2022 | $51.80 | Kelly Wolinski | 09/29/2022 | $20.91 | Big Hugs to you Kiley! | Jason Walsh | 09/29/2022 | $103.30 | Anonymous Friend | 09/29/2022 | $31.20 | Rock on, Kiley!!! I’m so proud of you for being the strong and social woman you are and continue to be!!! -Miss… almost Mrs. ;)… Ryan | Linda Thoren | 09/29/2022 | $100.00 | Brian&Betsy Pesko | 09/29/2022 | $51.80 | Julie Billimack | 09/29/2022 | $41.50 | Alice Belgrade Moss | 09/29/2022 | $50.00 | DANIEL TENNANT | 09/28/2022 | $156.40 | Steve Latreille | 09/28/2022 | $103.30 | Laura Lent | 09/28/2022 | $100.00 | Monica Ames | 09/28/2022 | $41.50 | Kiley, you are amazing!! | Dawn and Tom McNulty | 09/28/2022 | $103.30 | Thinking of you all - Gene, Kelly, Ryan and Kiley | Ken Cherry | 09/27/2022 | $103.30 | Keep fighting the good fight for Kylie and all that will come after her | John Marshall | 09/27/2022 | $51.80 | Love seeing that smiling face of Kylie! | Shirley Schaal | 09/27/2022 | $51.80 | Keep smiling Kiley! :) Love you!!! | Tom Ridgway | 09/27/2022 | $103.30 | Kiley Andrasco | 09/27/2022 | $206.28 | Courtney Pietrucha | 09/27/2022 | $51.80 | Love you Smiley Kiley! :) | Mark Benzaquen | 09/27/2022 | $51.80 | Thomas Ryan | 09/27/2022 | $103.30 | Kim Canning | 09/27/2022 | $51.80 | Anthony Napoli | 09/27/2022 | $103.30 | Monica Estand | 09/26/2022 | $103.30 | We love you Kiley! | Amy Kreutz | 09/26/2022 | $103.30 | Joan Cunningham | 09/26/2022 | $206.28 | Susan Hayes | 09/26/2022 | $103.30 | Michael Sharo | 09/26/2022 | $206.28 | Tamara Keller and Greg Lundgren | 09/26/2022 | $103.30 | Jacqueline VanBoldrik | 09/26/2022 | $103.30 | We love our cuz Kiley!! | Tobe Cohen | 09/26/2022 | $309.27 | Asher is wishing Kiley an episode free day for a great event! | Anonymous Friend | 09/26/2022 | $103.30 | IRVIN COLEMAN | 09/25/2022 | $103.30 | Lisa Olmstead | 09/25/2022 | $51.80 | Praying for a cure! ? | Michael and Sharon Hill | 09/24/2022 | $103.30 | Gene, Sharon and I are behind all your efforts! | Karen Lang | 08/30/2022 | $52.70 | Freda Noble | 08/29/2022 | $11.06 | Cindy Malin | 08/29/2022 | $5.91 | Mary Ann Korenic | 08/28/2022 | $103.74 | Dan Collins | 08/28/2022 | $309.72 | Melanie Collins | 08/26/2022 | $1.94 | Ralph Brower | 08/18/2022 | $100.00 | Dana Sharo | 08/15/2022 | $16.20 |
Total | $14,174.33 |