Kiley's Krew
Alternating Hemiplegia of Childhood Foundation
Kiley's Krew
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“Why was I born this way?” “Did you find a cure yet?”

We hear this often from Kiley, 21, when AHC steals her ability to walk, speak, eat, and drink. On a daily basis she doesn't know if her body will cooperate or if AHC will rear it's ugly head. It’s heartbreaking because she’s aware that she will miss out on the many milestones teens achieve, like driving a car, going away to college, meaningful friendships, or living on her own. She is aware that she is differently abled, but she still smiles, has a great sense of humor, and is the biggest social butterfly we know! 

We’ve had a roller coaster of a journey with Kiley, our family and friends, and AHC. We have struggled with years of AHC episodes, years of challenging behaviors, years of life-threatening seizures, and years of stress due to the unpredictability of this disorder and the secondary health conditions that come with it.  Although we try not to let AHC control our lives, we must often adjust and remain flexible. It has taught us patience, understanding, and above all, it has taught us strength and perseverance. 

Kiley is the reason we fight so hard for a cure. We will never give up hope to END AHC. We will never stop trying to raise the funds to accomplish this.

95 CENTS OF EVERY DOLLAR goes toward the AHCF’s mission to END AHC! 95 CENTS...AMAZING!

Please donate on behalf of Kiley and all of her friends suffering with AHC. Let's end THIS race, for good!

ABOUT Race to End AHC 2022
Supporters
Name Date Amount Comments
Janine Andrasco 12/12/2022 $100.00  
Sheila Andrasco 12/12/2022 $300.00  
Nancy Andrasco 12/12/2022 $100.00  
Paul Andrasco 12/12/2022 $100.00  
Mary Lu Wasniewski 12/12/2022 $100.00  
Stephen Forde 11/03/2022 $103.30 Stay Positive!
Erik Nistad 10/30/2022 $257.78 Anne and I are really glad that progress is being made in research and treatment of AHC.
Jeffrey & Sue Wagoner 10/28/2022 $100.00  
Don Mcdonald 10/28/2022 $50.00  
Alfred George 10/24/2022 $1,030.18  
Suzanne Weider 10/24/2022 $100.00  
Chuck & Susan McDonough 10/23/2022 $208.43  
Anonymous Friend 10/22/2022 $103.30  
Karen Palm 10/21/2022 $51.80 You are a warrior my sweet Kiley!!
Maralynn Kearney 10/20/2022 $103.30 Rooting for Kiley!
Ellen & Brian Krasavage 10/20/2022 $51.80  
Edie Radek 10/20/2022 $51.80 Keep going Kiley!!!
Joseph Loumeau 10/19/2022 $51.80  
David McMurray 10/19/2022 $50.00  
JD Bowlin 10/19/2022 $51.80  
Kelly Brodeur 10/19/2022 $26.06  
Anonymous Friend 10/19/2022 $51.80 Love being a part of Kiley’s Krew! Miss you guys.
Kevin Niwa 10/19/2022 $51.80  
Scott&Chris Pappas 10/19/2022 $51.80  
Madelynne Chappell 10/19/2022 $51.80  
The Hresko's 10/19/2022 $103.30  
Patti Oh 10/19/2022 $50.00  
Michelle Hallenbeck 10/19/2022 $208.43 Hoping for a cure!
Mike & Claudia Hornacek 10/18/2022 $100.00  
Kiley Andrasco 10/18/2022 $26.06  
Brett Henderson 10/18/2022 $100.00  
Dan Rizzo 10/18/2022 $51.80  
Jerric Ramos 10/18/2022 $51.80  
Mary Kass 10/18/2022 $51.80  
Carolyn Termini 10/17/2022 $500.00  
Pat Andrasco 10/13/2022 $51.80  
Kathy Sharo 10/11/2022 $150.00  
Rita Kapmarski 10/08/2022 $103.30  
Robert & Gail Hantak 10/07/2022 $75.00  
Tom Sampson 10/07/2022 $500.00  
Robert & Martha Nuckols 10/07/2022 $25.00  
Linda & Paul Pelczynski 10/04/2022 $300.00  
Walter & Geraldine Nykaza 10/04/2022 $100.00  
Lisa Bartlett 10/04/2022 $51.80 We will never give up Kiley! Be strong and fight! Much love from the Bartlett’s
Brittany Cain Miller 10/03/2022 $51.80  
Laura & James Fehrer 10/03/2022 $152.53  
Tom Pharris 10/03/2022 $100.00  
John & Beverly Sharo 10/03/2022 $100.00  
Barb & Terry Sharo 10/03/2022 $300.00  
Joe Petrarca 10/03/2022 $100.00  
Troy & Pam Smith 10/02/2022 $200.00 U go girl !
Andrew&Paige Pesko 10/02/2022 $51.80  
Gene & Kelly Andrasco 10/02/2022 $1,000.00 Kiley, we will never give up!
Courtney Carlson 10/02/2022 $103.30 We love you
Brian Lang 10/02/2022 $51.80  
Maureen Reid 10/02/2022 $103.30 Hope that someday no one will ever have to endure this disease.
Ron and Amy Amato 10/02/2022 $41.50 Good luck with your fundraising efforts to find a cure for AHC!
Katelyn Mendez 10/02/2022 $51.80  
Christina & Michael Peyser 10/01/2022 $77.55 Thanks for the smiles and happiness YOU bring to us and others...with your smile and notes...
Jennifer Waterman 10/01/2022 $103.30 Go Kiley!!!!! Team Kiley all the way!!
Karin Webber 10/01/2022 $103.30 Wish I could be there to support you and Kiley! Hope it’s a great day!
Betsy Hess 10/01/2022 $103.30 To the Andrasco Family: Wish I could be there!
Karen Albers 10/01/2022 $206.28 Good luck Kiley! Will be rooting from TN!
Zele Paz 10/01/2022 $103.30  
Annamarie Bader 10/01/2022 $51.80 Way to go, Kiley! Miss you! -Mrs. Bader ☺️??
Sandra Paolella 10/01/2022 $103.30 Kiley’s Krew!!
Kim Schroeder 10/01/2022 $51.80 Kiley- you are so amazing! Keep up the good work!
Leonard & Bernadette Ratuszny 10/01/2022 $75.00  
Antonia & Frank Fico 10/01/2022 $50.00  
Richard Sundstrom 10/01/2022 $700.00  
Jeni Hefferan 09/30/2022 $51.80 Go Kiley!
Dave and Maureen Leming 09/30/2022 $52.34  
Bridget Stodden 09/29/2022 $51.80  
Kelly Wolinski 09/29/2022 $20.91 Big Hugs to you Kiley!
Jason Walsh 09/29/2022 $103.30  
Anonymous Friend 09/29/2022 $31.20 Rock on, Kiley!!! I’m so proud of you for being the strong and social woman you are and continue to be!!! -Miss… almost Mrs. ;)… Ryan
Linda Thoren 09/29/2022 $100.00  
Brian&Betsy Pesko 09/29/2022 $51.80  
Julie Billimack 09/29/2022 $41.50  
Alice Belgrade-Moss 09/29/2022 $50.00  
DANIEL TENNANT 09/28/2022 $156.40  
Steve Latreille 09/28/2022 $103.30  
Laura Lentz 09/28/2022 $100.00  
Monica Ames 09/28/2022 $41.50 Kiley, you are amazing!!
Dawn and Tom McNulty 09/28/2022 $103.30 Thinking of you all - Gene, Kelly, Ryan and Kiley
Ken Cherry 09/27/2022 $103.30 Keep fighting the good fight for Kylie and all that will come after her
John Marshall 09/27/2022 $51.80 Love seeing that smiling face of Kylie!
Shirley Schaal 09/27/2022 $51.80 Keep smiling Kiley! :) Love you!!!
Tom Ridgway 09/27/2022 $103.30  
Kiley Andrasco 09/27/2022 $206.28  
Courtney Pietrucha 09/27/2022 $51.80 Love you Smiley Kiley! :)
Mark Benzaquen 09/27/2022 $51.80  
Tom Ryan 09/27/2022 $103.30  
Kim Canning 09/27/2022 $51.80  
Anthony Napoli 09/27/2022 $103.30  
Monica Estand 09/26/2022 $103.30 We love you Kiley!
Amy Kreutz 09/26/2022 $103.30  
Joan Cunningham 09/26/2022 $206.28  
Susan Hayes 09/26/2022 $103.30  
Michael Sharo 09/26/2022 $206.28  
Tamara Keller and Greg Lundgren 09/26/2022 $103.30  
Jacqueline VanBoldrik 09/26/2022 $103.30 We love our cuz Kiley!!
Tobe Cohen 09/26/2022 $309.27 Asher is wishing Kiley an episode free day for a great event!
Anonymous Friend 09/26/2022 $103.30  
IRVIN COLEMAN 09/25/2022 $103.30  
Lisa Olmstead 09/25/2022 $51.80 Praying for a cure! ?
Michael and Sharon Hill 09/24/2022 $103.30 Gene, Sharon and I are behind all your efforts!
Karen Lang 08/30/2022 $52.70  
Freda Noble 08/29/2022 $11.06  
Cindy Malin 08/29/2022 $5.91  
Mary Ann Korenic 08/28/2022 $103.74  
Dan Collins 08/28/2022 $309.72  
Melanie Collins 08/26/2022 $1.94  
Ralph Brower 08/18/2022 $100.00  
Dana Sharo 08/15/2022 $16.20  
  Total $14,174.33