Welcome to Joey's fundraiser to END AHC!

Joey has Alternating Hemiplegia of Childhood, and he was diagnosed when he was only 4 years old.  Alternating Hemiplegia of Childhood (AHC) is an ultra rare neurological disease that affects 1 in 1 million people. 75% of AHC people have the ATP1A3 gene mutation, but Joey falls into the small percentage that do not have the gene mutation for AHC. Joey is rare of the rare! AHC causes episodes of paralysis, uncontrollable eye movements, involuntary muscle movements, intellectual disabilities, behavior problems, and mobility issues.  Paralysis episodes can interfere with one side of the body, both sides of the body, and/or internal organs.  These episodes can last minutes, hours, days, and even weeks.  These episodes come on without warning, and the sometimes AHC episodes leave lasting permanent damage.

Currently, there is no cure for AHC, but Alternating Hemiplegia of Childhood Foundation is working tirelessly to END AHC.  Money raised for the AHC helps to END AHC by supporting leading research in AHC and equipping families to fight AHC. You can help to END AHC by donating today!  A donation of any amount helps AHC people to END AHC once and for all!