Alice's Army
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Alice's Army
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Alice was born on November 4th, 2020 and diagnosed with AHC on February 3rd, 2021. Alternating Hemiplegia of Childhood (AHC) is a rare neurological disorder that affects one in a million children. AHC is characterized by attacks of paralysis, involuntary muscle spasms, uncontrollable eye movements, changes in muscle tone and sometimes seizures. This can last anywhere from a few minutes to days and can cause cognitive and physical impairment or delay. These episodes are usually triggered by the unavoidable -- bright lights, loud noises, crowds, extreme temperatures, temperature change, water exposure, phyisical activity, odors, foods, emotional response, medications, and fatigue.

AHC is often referred to as "7 disorders in one"--
Stroke, Epilepsy, Cerebral Palsy, Parkinson's, ADHD, Autism, and Alzheimers.

There is currently no cure. AHCF, Cure AHC, and Hope for Annabel are partnering together to help fund research to develop a cure. It takes family and friends coming together to help raise awareness NOW! Time is of the essence for these kids; the older they get the less likely they will be eligible for clinical trials. Let's be apart of something huge not only for Alice but for other children with AHC.

Their future depends on it.

 

ABOUT AAV Project and Other Research

With funds raised from the AHC Foundation, we will support AAV gene therapy and other research related to the project.  We believe a path has been identified to a viable permanent treatment: gene therapy.  The gene therapy we propose will involve inserting a functional copy of the ATP1A3 gene into a virus (an adeno-associated virus or AAV) that has been stripped of its harmful payload and its ability to reproduce. The virus will then be injected into the cerebrospinal fluid and will carry the functional gene to the cells in the brain that are failing. By delivering additional functional copies of the gene, we should be able to rescue those cells, and treat the disease permanently. 

Learn more about the project here. 

 

Supporters
Name Date Amount Comments
Anonymous Friend 07/30/2022 $5.00  
Anonymous Friend 02/28/2022 $26.33 We pray they find a cure or a treatment for this devastating disease.
Anonymous Friend 02/17/2022 $20.91 I can’t do much but I want to help?
Anonymous Friend 07/17/2021 $5.46  
Anonymous Friend 06/02/2021 $10.61 I follow your sweet family on Tiktok and pray for Alice often! Praying for lots of good days, happy times, and a cure!
Karen Prokop 05/11/2021 $20.00  
Anonymous Friend 05/07/2021 $51.80  
Katrina Puno 05/06/2021 $20.91 Hugs and kisses to your daughter ❤️
Anonymous Friend 05/06/2021 $20.91
Anonymous Friend 05/06/2021 $10.00  
Anonymous Friend 05/06/2021 $26.06 Praying for you sweet Alice and your family.
Caroline Romeo 05/06/2021 $26.06 Sending prayers to this beautiful little girl and her family
Christina Barker 05/05/2021 $266.59 Sending joy ☀️ ❤️!
Anonymous Bless You 05/03/2021 $15.00 I’m a mother of a little girl named Lovely. She was born 3 years ago with multiple health complications. I’m praying for you as you stand and fight for the life of your little one. Truth be told the days that seem like bad days are truly the good days. Each day that she is alive is worth celebrating.
Anonymous Friend 05/01/2021 $15.76 I saw your tiktok and I thought, "Aww, she's so precious and looks like my daughter's age. (Seeing they are 2 days apart.)" Prayers to your family!
Anonymous Friend 05/01/2021 $26.06  
Josey Brooks 05/01/2021 $5.46 I saw your Tik-Tok and wanted to help as much as I could right now. God Bless Your Sweet Baby.
Anonymous Friend 04/24/2021 $412.26  
Anonymous Friend 04/24/2021 $26.26 Praying for a cure!!!
Erika Vargas 04/22/2021 $31.20 Wish the best to your daughter!!! I pray that God will heal her!!!
Anonymous Friend 04/22/2021 $51.80 Sorry I could not give more ?
Caroline Beckham 04/22/2021 $20.91 Prayers for this beautiful girl & her family.
Sandra Cordova 04/22/2021 $51.80 I hope they find a cure ASAP!
Anonymous Friend 04/21/2021 $103.30 Sending love and prayers to Alice and family ❤️ ? ?
Shawna Rizzuti 04/08/2021 $51.80  
Brooke Pavel 04/02/2021 $20.91 Hopeful a cure will be found! Prayers!
Timothy Silver 04/01/2021 $247.48 Silver Family Donation ❤
Heather Brittain 03/31/2021 $51.80 All my love, every day
Angela Lopez 03/24/2021 $51.80 Sending love! Always cheering you guys on.
Mark and Michael Hayes 03/23/2021 $257.78 Hope a cure is found! Best wishes to you and your family Tim!
Jessica Harsh 03/20/2021 $51.80 ❤️
Annette Rampy 03/15/2021 $103.30 God, please help this sweet child.
Lindsay Stinson 03/04/2021 $26.06  
Randy Earles 03/03/2021 $103.30 Keep the faith and stay strong!
Paul Gregory 02/23/2021 $250.00  
Jacob Philips 02/22/2021 $26.26  
Ethel Defenbaugh 02/21/2021 $100.00 I'm praying for a cure for Alice, my sweet little girl. Great Grandma loves you!
Ashland Colsen 02/21/2021 $127.27  
Mary Erickson 02/20/2021 $103.30 Sending love & light your way and hoping for a cure!!
Beverley Six 02/20/2021 $20.91 Sending our love and hope for a cure
Cy Phillips 02/18/2021 $520.60  
Evan Parker 02/18/2021 $26.06 Stay strong and keep fighting!
Cody Zoss 02/18/2021 $103.30 In support of Alice, her parents, and all families impacted by AHC.
Jason Zoss 02/18/2021 $154.79  
Steve Zoss 02/17/2021 $103.30 For beautiful Baby Alice and ALL children with AHC. A cure is on the way!
Nicole Johnson 02/16/2021 $77.55 My prayers to your family and girls! May the Lord give strength and comfort during this time!
Rebecca Deterding 02/16/2021 $103.30  
Shannon Mcwilliams 02/16/2021 $26.06  
Lauren Konrad 02/15/2021 $26.06 hugs to your sweet family!
Laura ODonnell 02/15/2021 $51.80 Hoping a cure is found quickly for Alice and all those affected by AHC!
Lori Polka 02/14/2021 $51.80 Prayers for Alice and all AHC kids.
Anonymous Friend 02/14/2021 $21.12 Prayers for Alice and family.
Brad and Jennifer Neal 02/14/2021 $309.27 We are behind you guys! Wonderful parents and darling Alice!
Bailey & Alex Kloberdanz 02/14/2021 $26.06 Praying for a cure for Alex!
Mollie Sink 02/14/2021 $15.76  
Kate Zoss 02/14/2021 $100.00 From Great-Grandma Zoss
Anonymous Friend 02/14/2021 $70.00  
Glenda Gregory 02/14/2021 $206.28  
Praveen Aripirala 02/14/2021 $155.82 I hope they find a cure soon!
Evan Sabby 02/13/2021 $50.00  
Anonymous Friend 02/13/2021 $10.61 Find a cure!
Lori Nelson 02/13/2021 $51.80 I hope you meet/exceed your fundraising goal! Praying for Alice and for your family.
Sheryl Garman 02/13/2021 $50.00  
Anonymous Friend 02/13/2021 $20.00  
Carolyn Vipond 02/13/2021 $51.80  
Stephen Henderson 02/12/2021 $206.28 The Henderson's stand with you. Together, we will fight for a cure for Alice, Estella, and all children with AHC. Sending our love and prayers for Alice to have many good days.
Claribel Vizcarra 02/12/2021 $102.02  
JORDAN Silver 02/11/2021 $1,030.18 Silver Family donation to help find a cure
Danielle Philips 02/11/2021 $51.52 We will find a cure!
Reid Elattrache 02/11/2021 $206.28 Love, Katie and Reid
Joni Champion 02/11/2021 $51.80 We are here for you guys and baby Alice.
Katie Thompson 02/11/2021 $51.80 Thinking of Alice, the Silver family, and all other families going through this fight. Let’s find a cure ❤️
Ali Rockwell 02/11/2021 $103.30 We love you Alice!
Tom and Marilyn Rockwell 02/11/2021 $206.28 This comes with our love for all the sweet children.
Sandi Philips 02/11/2021 $53.66 Thoughts and prayers are with you Alice!
Shelby Silver 02/11/2021 $51.80 Praying for a cure to be found soon!! Tyler and I are here for you guys if you need anything!!
Liz Crees 02/11/2021 $103.30  
Valerie Defenbaugh 02/11/2021 $2,021.21 For our granddaughter Alice and for all AHC families!
Anonymous Friend 02/11/2021 $103.30 For our great granddaughter little warrior Alice.
Beverley Six 02/11/2021 $20.91  
Sarah Allan 02/11/2021 $31.20 Prayers & love for your family!
Garry Goode 02/11/2021 $51.80 I hope they find a cure soon! You all are in my thoughts and prayers
Ron & Dee Zoss 02/11/2021 $200.00 Sending love & prayers for Alice and other families affected by AHC.
Brooke Stowe 02/11/2021 $100.00  
Sarah and Kevin Merrill 02/11/2021 $51.80 Wishing the Silver family love and resilience.
Kristin & Jeremy Hanson 02/11/2021 $206.28  
  Total $10,252.08